Indata collection in non-public spaces, the research participant must be appropriately notified and permission obtained whenever possible.
However, in cases where PII is collected in non-public spaces, the research participant must always be appropriately notified and his/her permission obtained.
if an individual is asked to participate in research (e.g., a survey, a focus group, or other research project, either in-person or via some other means of communication, such as telephone, mail, or online).
When research participation is , the individual is most often referred to as the "respondent” as research surveys are typically used.
In this situation, if the individual’s personal identity and/or personally-identifiable information are obtained in the process of observation or online data collection, the research organization shall protect the privacy and security of that information as required by law, this Code, and the standards of professional research practice.
If personally-identifiable information cannot be de-identified, the research organization must delete the personal data or seek informed consent from the individual for any further research or data record use.
Preamble Research organizations have ethical and legal responsibilities to research participants.
These ethical and legal responsibilities must be disclosed to research participants, thereby forming a "chain of trust” relationship between research organizations and research participants.
This Code is not intended to be, nor is it, an immutable document.
Circumstances may arise that are not covered by this Code or that may call for modification of some aspect of this Code.